2020 Medical Update

I get an incredible amount of questions from people asking about my health. Which has made me realize that I haven’t written about it in a while. And although that has been partially on purpose, I figured I may as well do an update for you. If you have no clue what I’m talking about (’cause I’m just going to jump right in, maybe start here.)

As I sat here, praying about this post, I asked myself what verses I would use to describe this journey God has placed me on. The first ones that came to mind were the words of Mary:

‘And Mary said,
“My soul magnifies the Lord,
and my spirit rejoices in God my Savior,
for he has looked on the humble estate of his servant.
For behold, from now on all generations will call me blessed;
for he who is mighty has done great things for me,
and holy is his name.’
Luke 1:46-49

Holy is his name. Yes! He has done great things for me! What a magnificent God we serve, who looks on us, who holds the details of life in his hands!

The short answer to “How’s your health?” is that there are good days and bad days. I’m thankful for both and how the Lord takes care of me on every one.

I don’t have seizures anymore, kept at bay with the meds. The side effects from the meds come and go but I recognize them better now which makes them lose a lot of their power. It’s amazing how well you can fight depression and fatigue once you know the source of it AND you know the One who holds joy and strength for you.

The headaches are still constant but the intensity varies from day to day. I’m used to them and only on really bad days do I feel like holding my head all day. There are days and weeks where I overdo it still. (Newsflash! I’m not perfect. 🙂 ) Days where I need more rest. I try not to get to the point of exhaustion as much as I used to.

I truly do mean those words of Mary. I have learned to focus less on myself and more on Jesus and others. I think that’s why I have difficulty answer the health question; I don’t sit and think about it and it’s not looming over me anymore. I’m blessed to be able to work again, run again, take walks with friends, serve at church, take biblical counseling classes, volunteer at our pregnancy resource center, and minister to those around me. At some points over the last few years, a lot of those things felt like impossibilities, but we serve a God who glories in our weaknesses.

So I guess you could say that maybe not much has changed except my perspective and attitude. And isn’t that what the Lord is always after anyways?? Above all else, he desires our full affections and worship and that is the place he has brought me to.

Holy is his name.

 

The Third Mile

If you look at my running stats, my slowest mile will always be the third one. I despise mile three. I’ve run 5Ks before but as a general rule, I don’t run three miles unless I’m in a race. I’ll run 2 or 4+ before I stop at 3. It may sound dumb but that third mile is a killer for me. I’ll be feeling just fine and then suddenly my stomach decides it would like to be on the outside of my body, and my head thinks it has a drum inside, and my feet seem to be made of lead. Worst. Mile. Ever.

Today marks the end of Mile Three since my first seizure. I can’t believe it’s been three years. Seems a whole heck of lot longer to me. And I’m not gonna lie; they have been hard years. Some days I still long to have “myself” back. Sounds weird, huh? Every time I meet a new friend, I still have the feeling that they aren’t meeting the real Kimmy and sadness creeps over me. Like they only are getting to know a partial person. Some days I could do without the constant headaches and the exhaustion.

I have been seizure free for 1 year and 4 months now. That is the most common question I get asked about my health and I really do thank God for that fact. But that doesn’t mean I feel a lot better. Some days I do but not usually. Some days I feel like a petty teenager with crazy emotions everywhere! Side effects of meds are hard, folks.

It’s not a big secret that John is my favorite Gospel. (Are you allowed to have favorites??) I LOVE that book. Last week I heard a sermon that referenced John 12:24-26. In those verses, Jesus talks about how a seed must die in order to bear fruit. And because of his death, SO much fruit would come! Verse 25 stands out to me:

“Whoever loves his life loses it, and whoever hates his life in this world will keep it for eternal life.”

I’ve been asked if I could go back to before April 10, 2016, would I? And the answer is no. There is so much that God has taught me about himself and I wouldn’t give that up. There are areas that I needed to grow in spiritually and I know that now. I loved my life a lot back then and it was really selfish of me. I’m glad I lost it. I have a better, more eternal view of life now.

One of my newest favorite songs is “Scars” from I Am They. The first part of it goes like this:

Waking up to a new sunrise
Looking back from the other side
I can see now with open eyes
Darkest water and deepest pain
I wouldn’t trade it for anything
‘Cause my brokenness brought me to You
And these wounds are a story You’ll use
So I’m thankful for the scars
‘Cause without them I wouldn’t know Your heart
And I know they’ll always tell of who You are
So forever I am thankful for the scars

I love that. And it’s so true. Without having gone through all the hardship, I wouldn’t know Christ as well. I wouldn’t have the opportunities I have now to minister to others. So I’m thankful. Just a few verses down in our John passage, Jesus is praying and he says, “Father, glorify your name.” (vs.28) Amen. That’s my prayer also, whether Mile Four gets easier or not. 🙂

 

Secured by God

I’ve had a lot of conversations recently on salvation, mine in particular. Whenever I used to tell people my testimony, I would always start it out with, “Well, it’s pretty boring…” But one day I was really convicted by that. I realized that ANY time God takes a dead person and breathes new life into them and gives them the gift of salvation, it’s INCREDIBLE! It’s MIRACULOUS and AMAZING! Who am I to call God’s work boring??!

So I’m here to tell you a story of Amazing Grace. To be quite honest, I don’t remember a time when I didn’t believe in Jesus as my Savior. I know there must have been, but I don’t recall that. I actually remember being in 1st grade or so and my Sunday School teacher told us the gospel and asked who all in the class believed it. Well of course I did! So I raised my hand. And then she had all of us close our eyes and pray “THE” prayer after her. You know what I mean. And I literally remember sitting there and telling God that I thought this was silly and didn’t understand why I needed to pray this because I was already saved. Those 6 year old minds. 🙂

It’s only been recently that I’ve realized what a huge blessing I’ve had all these years. I know A LOT of people that struggle with doubt and I never did growing up. Ever. God says it. That ends it. It’s true. God is who he says he is. It was pretty simple. I never doubted the Bible or my salvation.

2018 was hard. God and I alone know it. And let me tell you folks, it’s extra hard to be on three medications that cause depression. A sinful heart is enough to handle without that! And I struggled a lot last year. In my loneliness and desperation to be close to God, I worked so hard. I worked myself to a frazzle praying and doing my devotions because I so desperately wanted to feel that Presence that was once there.

And there came ONE awful day. The first and only day in my life where I have questioned my salvation. Suddenly I looked at how hard I was “working” and verses and sermons flew through my mind and one single thought crept in out of nowhere, “You don’t understand salvation at all.”

I have been through many bad days but none as bad as that one. I can’t even describe the hopelessness and darkness that I felt on that day. And I felt powerless against it. No matter what Scripture I read or what I forced myself to think, nothing helped.

It wasn’t until very late that night that God gave me the thought I needed:
“You know what? I don’t understand it. It’s waaaay beyond me. But even if I wasn’t saved before, God can save me right now.” With a rush every assurance came back. And with a immensely grateful heart I thanked God that my salvation was secured by him and not by me!

As I reflected the next day, I wrote in my journal that I never wanted to have another day like that again. It was terrible and confusing. But I can see how God has used that one day. I have NEVER been able to understand how people doubt God or salvation. But now I have a small point of reference, of empathy, of feeling. A way that connects me with my friends and helps me pray for them better, with a hugely humbled heart.

So take heart friends! I know the journey can be hard and thoughts creep in! God is ALWAYS faithful- that’s the ONE thing I’m positive of.

 

Living With and Without

Hey did you guys know life gets busy around Christmas? Nope? Just me? Okay well then I apologize for not posting but I’ve been enjoying the season and being busy serving where God puts me. Annnnyywaaays..on to the today’s post!

If I could go back and meet any one Bible character it would definitely be Paul. (Jesus being exempt from this theoretical question, of course.) I love Paul. His testimony, life, example, writing…everything. I love his rhetorical and sarcastic questions in Romans (he cracks me up) and his love for all the saints. Yup, he’s my favorite.

In Philippians 4, Paul talks about how he has learned to be content in whatever situation God has him in. He has learned to live with plenty and to live with nothing. I’ve been thinking about this a lot lately because I’ve been thinking about finances. (I work at a bank for goodness’ sake, people!)

I never really worried much about money in the past. I always had more than I needed and I lived what I considered simply. In 2017, when it became clear to my doctor and I that I needed to take a break from working, things changed. It meant I needed to move into an apartment and (gasp!) actually pay for housing. It meant no income until I could go back to work. It just meant a lot more expenses in general. And I was prepared but it was still a little nerve wracking.

There was one Sunday I never want to forget. It was right before I was going to be done at the Farm and I was having a really rough time emotionally, physically, mentally- all of it. I had just finished up a conversation with a lady who meant well but was stressing me out with details that I didn’t have yet. I just wanted to trust that the Lord had things figured out that I couldn’t answer yet and that wasn’t good enough for her. I walked around the corner and (in my usual, fake fashion) I flashed a smile at one of the elders of my church as I started to walk by him. But he didn’t let me walk by. He pulled me around and I realized it was a group of elders there. They didn’t ask me if I had everything figured out; they put their arms around me and prayed with me. And that wonderful man is now in heaven getting some reward for calming and encouraging a discouraged heart at that moment.

But at some point, I did have to think about money. It just wasn’t then. God SO blessed me that I had plenty saved so that I didn’t “have” to worry during my rest time. It was still in the back of my mind that I didn’t have any incoming money, just outgoing, but I knew how much was there and I kept an eye on it. 

In general though, I don’t spend a lot. But I found out that when finances got tight, I didn’t get to spend money on the things I loved doing. Random baking adventures for my friends kind of stopped because suddenly butter looked really unnecessary. Not that I COULDN’T have bought it. It was more evaluating the need.

This year, as I looked at coming off my Dad’s insurance, panic came into my mind. I knew there would be a 3 month gap between coming off and when my work insurance kicked in and I was honestly scared. I prayed and worked my butt off to organize because in case you forgot, meds are REALLY expensive. And just when I thought I had it all figured out that I could get a 90 day supply before coming off insurance, that fell through.

Do you know what I learned? To be content with and without, in every circumstance. Over and over again, I have to remind myself that God has ALWAYS supplied my every need. Sometimes that’s been through other people saying, “Hey, I’m going to get that for you. I know you CAN but I don’t want you to have to worry about it.” And that’s really humbling, folks.

But wait, there’s more. I’ve had money show up anonymously in my church mail box. I’ve had my medications drop in price for NO REASON. To the point that the pharmacists can’t figure it out! This last time I went to get my most expensive med and it wasn’t ready yet. She looked at me hesitantly (they always do) and asked if I was aware of the cost. I said yes and confirmed it. When I came back 20 minutes later, it had dropped over $300!!! I just stared at her. She had no idea why. I’m convinced God creates computer glitches in my favor. That’s literally not the first time that’s happened to me.

Maybe this post sounds to you like a plea for help or money. Oh no, it’s not. It’s an exclamation of praise! And it’s an encouragement. I know a lot of people that worry about finances. Sometimes it’s still a mind struggle for me and I rehearse God’s faithfulness to myself. I’ve never been in need. And I’ve certainly never been in need to the extent that Paul was!

It’s also a reminder to continue to be generous even when you don’t have much. I remember hearing a sermon as a kid on finances and my pastor said as an example that the first check he writes out every week is the one to the church. And I remember thinking, “Huh? What’s the big deal?” Yeah…I get it more now. The temptation is to let that be the last thing because it’s not necessary like a bill and THAT’S exactly why you put it first! I’ve been blessed to remember that this year. I’ve gotten creative with how I choose to bless others. Sometimes, all people really want is a listening ear. It doesn’t cost anything to go to the nursing home and read your Bible to an elderly lady and listen to her story. There are ways to give that involve money and there are ways to give that don’t; both are vitally important.

Anyway, I think I’ve rambled on enough tonight. What has God taught you about finances and trusting him through it?

 

Forced to Rest

It’s no real secret that I am tired all the time. Literally. I wake up tired and with a headache and that’s how it is all day long. I’m learning to be content with that. But what most people don’t know is that I have a really hard time resting. I can’t remember the last time I took a nap. My friends tell me all the time, “Oh honey, why don’t you just go curl up with a blanket and take a nap?” And I will smile and say that sounds like a wonderful idea. Because it really does.

I’m on three strong medications that CAUSE sleepiness and wear me out but the one also has a side effect of insomnia that really works. No naps for me. Sad day. I have been known to be so tired that I tell my friends I wish they would just knock me out so my body could get some rest!

Which actually brings me to the point of this post. (Don’t worry, I was getting there.) A month or so ago, I was in a Sunday School class on prayer. And it was a wonderful class. One of the lessons was on praying Scripture and we were talking about Psalm 23. As an example, my teacher asked if someone would be willing to pray that passage and an older lady at my church volunteered.

But as she prayed, something new struck me. Verse 2: “He makes me lie down in green pastures. He leads me beside still waters.”

Hmmm makes me? Like forces me to lie down, to rest? If I’m honest, there have been many times in my life when I don’t want to rest. When I get so crazy busy and I have seen God slow me down. And if I’m totally honest, I didn’t like it. I wanted to do things my way at my speed. But now that physical rest is SO desirable and out of reach for me, I recognize the importance of it.

But of even greater importance is spiritual rest. Verse 3: “He restores my soul. He leads me in paths of righteousness for his name’s sake.”

Whenever I read this I’m reminded of how utterly thankful I am for soul-restoration! How when I’m worn out and tired, my SOUL can still be at rest because of Jesus Christ! How when I can’t find the energy to do anything, somehow I find energy in talking about my Savior and his incredible love! What a thing to praise the Lord for.

 

Thoughts from 1am

I used to shake my head and laugh at those bloggers who stayed up till all hours of the night writing out their posts because I knew that would never be me. And yet here I am at 1am in the morning, typing out a post because I’ve tried everything else to fall asleep and it’s not working.

I have a very good night time routine. I don’t eat anything in the late evening, stay off electronics right before bed, and I’m usually in bed between 10-10:30pm. I brush my teeth, take my meds, read my devos, and lay down. Usually my meds knock me out within 10 minutes and it’s all good. But tonight it’s not working. I laid down and a very intense feeling of rage came over me. Why? Good question. I’ve been trying to figure that out for two and a half hours. And why it has happened the last two nights also. A feeling of frustration and anger for no reason that makes me restless and unable to fall asleep. Then I remembered.

When I first started taking these meds, my emotions got really out of whack. Like, seriously bad. Picture the stereotypical teenager in puberty and that’s pretty much what I was like. One minute I would be nice and cheerful and the next ready to scream at the top of my lungs with no cause for the change. It was SO frustrating to suddenly feel out of control of my emotions but still be responsible for them! A friend of mine suggested that I start taking a natural supplement, St. John’s Wort. I’m kind of wary of natural remedies (apologies to every lady at my church!) because I haven’t had any success with them and get tired of hearing how they will solve all your problems. But this lady is an ER nurse (plus my doctor agreed that it was a good idea) so I begrudgingly decided to try it for a few weeks and my emotions leveled out to a manageable degree. I haven’t stopped taking it in probably a year or so.

Until Wednesday when I ran out and forgot to get more! Guess when the issues started. Yeah…

You know, sometimes I hate taking meds and that supplement because I don’t like feeling dependent on them. But this week has reminded me that the side effects of my medications are real and I can’t ignore them. We live in a fallen world where things: hearts, bodies, brains, etc are broken and need help. It’s okay to use what God has given us to help them. It’s good to take the meds and be grateful for them.

Okay, that’s all. Now maybe since I got that off my mind, I can get some sleep! Goodnight all!